Skillshare

Last year i signed up to some skillshare classes. Its where a professional uses there skills and sets you projects to do. My first one is called 'The first steps of hand lettering - concept to sketch'.

We had to come up with a phrase to hand letter. My phrase is ' I make pretty things all day'. Not partically inventive but i like it to start with.

I wanted the main emphasis to focus on the word pretty and this is my initial designs.

The January blues

Yes it's new year and I have the January blues. I'm going through the motions of woe is me. Then. I read this by a fellow person with ehlers danlos syndrome and other complications.

Stripes For Life My Eds Journey

45 minutes ago · 

Age really really is only a number
About 9 years ago I met a lovely gentleman at the doctors surgery I remember I was in leaving cert at the time and that was b4 I was doing all self care of illness so was attending gp twice a week . This gent was also .attending for medical reasons ,.We have remained firm friends over the years and have gotten closer more so in the past three years myself and my mum often call to him his wife and his daughter who lives next door to them .theres a sparkle In his eyes when he sees me at the door and instant conversation starts even though there is a 50 odd year age gap we are never stuck for a topic of conversation he's the sweetest gentlest man I know .
N today was an extra special treat as his daughter in law was after baking them a Madeira my favourite favourite cake and we all sat in front of the stove eating our slice .
I. May have lost a big number of friends to my illnesses but my gosh I've gained double xxxxxx
‪

This really changed how I felt and I needed to read this to realise that yes life is hard and I have lost a lot since becoming ill. However I have also gained. If I didn't get unwell then I wouldn't have met so many genuine people. People who Really interest me and make to want to carry On and for that I am. Hugely Thank full x

Hospital

Well i was doing so well and then a virus got me. It took away my ability to sit up, which as some of you know am in a wheelchair so i need all the muscles i can get to be able to transfer.

I spent 4 days in bed and then begged mum to take me to the gym. I go for 2 hours a week and its not just about exercise, its about the social side as well. My gym instructor babysat me for abit and took me to see his dogs. I love animals so it really cheered me up.

Mum made a doctors appointment against my wishes hehe. I just thought i would get better, however the doctor took one look at me and sent me to the hospital.

I don't remember much of my 3 week stay but i will tell you the bits i do remember. I had to be hoisted in and out of bed and i couldn't hold my head up. My bladder stopped working so i had to be catheterised. I stopped eating and drinking as my swallowing was affected. I was the put on a feeding tube. Its a tube that goes up your nose and into your stomach. I also had to have endless drips and replacement vitamins as i lost some. They also messed with my anti depressants and put me on another one. That was hell as i turned into a monster. Luckily I'm back on my ones now and nice Hayley is back hehe.

Slowly i started to recover and came out last Monday. There was a problem though. The hospital said they had referred me to rehab but lied as they hadn't even done the referral. I rang my o.t and she got me into the same one I've been in the last 2 years. I am sooo grateful to my physio and o.t. I know i can count on them if i get ill.

After spending 3 days in bed at home, i finally had a place at rehab and that's where i am now. Due to my ehlers danlos syndrome and probably the virus, my stomach muscles don't work well so i have lost a huge amount of weight and am on endless medication.

I am relearning how to sit up and use my muscles again. After being in bed for about a month, i have got very weak.

There were times that i didn't want to carry on. I didn't want to start all over again. But slowly i got there.

Can't wait to spend Christmas with my family and happily see the new year.

Merry Christmas to you all xx

Sewing

Lately I've been getting into sewing. I also wanted to sew but everything would turn out rubbish. However it seems to have finally "clicked" and I'm not getting so stressed.

So here is my first project. I made it for my brother's girlfriend's birthday. Hope she likes it.

I have been missing from my blog again, ooopsy. As always life has been a mad rush of hospital appointments.

Anyway, i seem to have a new addiction, sewing. I won a book in a competition and i fell in love with it. It's actually for children but i found the instructions much easier to follow than any other sewing book.

Here is my first make. Rover and his baby.

Lately i have been reflecting on what i really want out of life. I've has the past 3 weeks off from going to the gym and it has given me time to think and also do things that i really want to do.

The last few months have all been about trying to walk again in my new leg braces. I have about one good day a month where I'm able to do more than a few steps. The problem being is things have become quite repetitive week in week out. Gym twice, physio, doctors, consultants.

If i have an appointment in the morning, for me that is my whole day as i get so exhausted i will go to bed till all afternoon. I'm not getting any time to do things i actually want to do. I've decided that i don't want my life to be all able trying to walk again. I want to actually have a life.

Being in a wheelchair is not the end of the world. Ive been on my chair for over 2 years now, I'm used to it. Walking is alien to me now. The chair hasn't stopped me doing anything, its my other conditions and exhaustion that have.

I decided in September i am going to do a college course on a Saturday morning for 6 weeks. I've also found a hydrotherapy pool to go to on a Monday., which i think will mean dropping a gym session.

In other news I'm struggling with food. My stomach has slowed down because of my condition. I never thought i would be in a position where i have to eat as many calories as i can. I always wanted to lose weight and now its the opposite. Also my appointment with my gastro consultant was moved from September to April 2015, eeeeek. However is has now been moved to October this year, phew.

Anyway your get a gold star for reading all this, ill leave you with picture of  a scissor case that i made.

Recent Creations

My first ever pin cushion that i made. I may have become addicted to sewing now .

                                                      Cards i made for charity

 And finally a pic of me on my 30th birthday. I had a lovely time at my brother's in somerset and the world hasn't ended now that I'm older haha.