Sunday, 7 December 2014


Well i was doing so well and then a virus got me. It took away my ability to sit up, which as some of you know am in a wheelchair so i need all the muscles i can get to be able to transfer.

I spent 4 days in bed and then begged mum to take me to the gym. I go for 2 hours a week and its not just about exercise, its about the social side as well. My gym instructor babysat me for abit and took me to see his dogs. I love animals so it really cheered me up.

Mum made a doctors appointment against my wishes hehe. I just thought i would get better, however the doctor took one look at me and sent me to the hospital.

I don't remember much of my 3 week stay but i will tell you the bits i do remember. I had to be hoisted in and out of bed and i couldn't hold my head up. My bladder stopped working so i had to be catheterised. I stopped eating and drinking as my swallowing was affected. I was the put on a feeding tube. Its a tube that goes up your nose and into your stomach. I also had to have endless drips and replacement vitamins as i lost some. They also messed with my anti depressants and put me on another one. That was hell as i turned into a monster. Luckily I'm back on my ones now and nice Hayley is back hehe.

Slowly i started to recover and came out last Monday. There was a problem though. The hospital said they had referred me to rehab but lied as they hadn't even done the referral. I rang my o.t and she got me into the same one I've been in the last 2 years. I am sooo grateful to my physio and o.t. I know i can count on them if i get ill.

After spending 3 days in bed at home, i finally had a place at rehab and that's where i am now. Due to my ehlers danlos syndrome and probably the virus, my stomach muscles don't work well so i have lost a huge amount of weight and am on endless medication.

I am relearning how to sit up and use my muscles again. After being in bed for about a month, i have got very weak.

There were times that i didn't want to carry on. I didn't want to start all over again. But slowly i got there.

Can't wait to spend Christmas with my family and happily see the new year.

Merry Christmas to you all xx