Saturday, 30 September 2017

Christmas box and tutorial link

This week I've been back in my craft room. As I need to use up a lot of card, I decided to make a box to put my brothers present in.

I had to resize it to the gift I got but you can see the tutorial here. http://www.craftycarolinecreates.com/2016/09/large-useful-christmas-gift-box-with.html?spref=pi





Sunday, 17 September 2017

Pain I've never felt before


I needed to write this post. Just to get my thoughts down as it's been playing on my mind. 

I can't remember much of my hospital stay but there is one day that I don't think i will forget for a while. It was a Saturday. I was in hospital on iv antibiotics due to an infection around my Hickman line site.
I woke up feeling ok but later on in the morning suddenly I was freezing. Freezing cold to the bones. I was in agony. The pain started in my lower back and went through my legs. I couldn't lay, I couldn't sit. I can't stand anyway. It was something I had never felt before. I cried my eyes out begging the nurses to help. 
As it was a Saturday there were no doctors around. It was hours of sheer hell before anyone could help me. My temp was 39.4, my heart rate 148 and my blood pressure plummeted.  The nurses could only do so much to help. I was hysterical and threatened to drag myself to A and E for help. I was desperate. Usually I never make a fuss and have a high pain threshold.Finally a doctor came, a junior doctor who seemed new and out of her depth. She treated me like I was overreacting and gave me simple oral painkillers. 
I was still hooked up to my tpn but it got turned off she told the nurses to turn it back on. This is a big no no. If your temp is above 38 it gets stopped as tpn feeds bacteria. I would later find out that the infection was in my line to. So every time tpn was turned on it was spreading bacteria throughout my body. She later got a telling off and was very nice after that . Surprise, Surprise.
Later another doctor comes and gives me the right painkillers.Finally it eases. I had to be monitored closely as my blood pressure was terrible and be given a lot of Iv fluid quickly to try and bring it up. I couldn't sit up without feeling sick or sooo dizzy.
It's only now that I'm home and I've started to process it. I was terrified but I'm also terrified it's going to happen again.
My body will take a while to recover. I spoke to my consultant about my exhaustion and he said oh yes because you been through a lot.
I'm frustrated that I can't do the things I want. I realise how short life is. I want to do things now in case I end up in hospital tomorrow, because you just never know.

Hayley x


Thursday, 14 September 2017

I'm home from a long stay in hospital

First I apologise if this post doesn't make any sense. My brain is a bit mush at the moment.

I finally got out of hospital last Thursday after a month. I don't remember much of my stay. After going through 4 antibiotics the infection in my  Hickman line finally cleared. It had to be taken out and a new line placed. I hate having new lines as it's very traumatic.I've lost a lot of strength and am currently staying at my parents house.

While I was in hospital. The council came round to adapt my bungalow a bit more.Some doors have been widen and a wall has been shaved abut to allow me better access.This means hopefully I won't destroy my walls, doors and wheelchair anymore.

I'm ready to go back to my house now. It's going to take a while to get myself back to how I was before. At the moment I'm terrified of another infection as I've had 3 lines in 4 months and not sure I can go through it again. All I can do is try to be as sterile as possible.

Changing the subject. As some of you know I love to grow veg in my garden. I was worried about it while I was away, yes I'm weird I know. I missed my sweetcorn growing and proud to say I grew it from seed. It's nearly ready now so here is a pick for you.



Apparently the sweetcorn is the long bit under the fluffy bit. Haha. Sorry not a very good description.  When the fluffy bit gets dark then the sweetcorn is ready. Not long now. Sadly my tomatoes didn't do so well this year and I only had one red one. There's always next year.

Bye for now
Hayley x